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Dr. Bob is Robert Hsiung, MD,
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Posted by KaraS on June 13, 2005, at 2:01:14
In reply to what clinic/doctor are you seeing?, posted by iforgotmypassword on June 12, 2005, at 22:49:41
I'll send you a babblemail with the details.
K
Posted by iforgotmypassword on June 13, 2005, at 3:10:31
In reply to Re: what clinic/doctor are you seeing? » iforgotmypassword, posted by KaraS on June 13, 2005, at 2:01:14
Posted by KaraS on June 14, 2005, at 19:58:29
In reply to Re: rEEG intake session today » Sarah T., posted by KaraS on June 11, 2005, at 15:00:33
Since my pulse rate has been in the normal range when I took it over the course of a day, the doctor said that I don't need the beta blockers. It was only high in his office because I was stressed out and afraid.
Now, he wants to get me in to have the actual rEEG done earlier - at the end of this week or the beginning of next week. He will do it with the small amount of doxepin that I'm on as I literally can't function for 12 days without it or something else for the anxiety. He said he'll just have to adjust for that mentally. I hope it doesn't throw things off by too much and draw out the process. I'm excited that things will be moving along quickly though.
Posted by Sarah T. on June 14, 2005, at 21:48:41
In reply to Re: rEEG intake session - follow-up, posted by KaraS on June 14, 2005, at 19:58:29
Hi Kara.
Thanks so much for the follow-up. I think it makes sense to stay on the tiny bit of Doxepin. Perhaps, at a later date, you can have the rEEG when you're not on any meds, but for now, this seems like the best course of action. I'm glad to hear that your pulse has been normal. Please continue to let us know how things are going.
Posted by KaraS on June 15, 2005, at 2:43:16
In reply to Re: rEEG intake session - follow-up » KaraS, posted by Sarah T. on June 14, 2005, at 21:48:41
> Hi Kara.
> Thanks so much for the follow-up. I think it makes sense to stay on the tiny bit of Doxepin. Perhaps, at a later date, you can have the rEEG when you're not on any meds, but for now, this seems like the best course of action. I'm glad to hear that your pulse has been normal. Please continue to let us know how things are going.
Hi Sarah,
That was very kind of you to post that. I regretted writing my last message. After sending it I thought that it didn't contain any important information for people who are interested in hearing about the rEEG process. It really only was a detail that's important to me.
Anyway, I appreciate your support.Kara
Posted by ed_uk on June 15, 2005, at 9:09:14
In reply to Re: rEEG intake session - follow-up, posted by KaraS on June 14, 2005, at 19:58:29
Hi K!
>Now, he wants to get me in to have the actual rEEG done earlier - at the end of this week or the beginning of next week.
I'm excited for you :-) Tell us how it goes :-)
Ed xxx
Posted by ravenstorm on June 15, 2005, at 10:45:10
In reply to Re: rEEG intake session - follow-up » KaraS, posted by ed_uk on June 15, 2005, at 9:09:14
Could you please tell us what doctor/clinic you are seeing, so others could benefit from this treatment? I am very interested. Thanks.
Posted by KaraS on June 15, 2005, at 17:03:26
In reply to Re: rEEG intake session - follow-up, posted by ravenstorm on June 15, 2005, at 10:45:10
> Could you please tell us what doctor/clinic you are seeing, so others could benefit from this treatment? I am very interested. Thanks.
Hi,I sent you a babblemail with the details.
If all goes really well for me and there's enough interest on the board, then I'll post all of the details here as well.
Kara
Posted by Cairo on June 16, 2005, at 19:43:36
In reply to Re: Great news! Let us know how it goes., posted by Phillipa on June 11, 2005, at 17:17:30
Here's the thread:
http://www.dr-bob.org/babble/20050322/msgs/473939.html
Cairo
> Kara, That Thread you mention is well worth finding. There's a doctor who has a clinic which uses all the various scans who contributes to the Thread. It is through and extremely interesting. Google it. Fondly, Phillipa
Posted by Cairo on June 16, 2005, at 19:59:19
In reply to Re: what clinic/doctor are you seeing? » iforgotmypassword, posted by KaraS on June 13, 2005, at 2:01:14
I would greatly appreciate the name of the doctor/clinic also. Thank you.
Cairo
> I'll send you a babblemail with the details.
>
> K
Posted by Phillipa on June 16, 2005, at 20:23:14
In reply to Re: what clinic/doctor are you seeing? » KaraS, posted by Cairo on June 16, 2005, at 19:59:19
That's it! That's the one. I thought it was a great Thread. It's so nice when a doctor takes the time don't you think? Fondly, Phillipa
Posted by KaraS on June 17, 2005, at 1:17:35
In reply to Re: what clinic/doctor are you seeing? » KaraS, posted by Cairo on June 16, 2005, at 19:59:19
I had wanted to see how things turned out before posting the name the name of the doctor/clinic but I think enough people are interested so I'll just post that information here now.
There are 3 doctors who are fully versed in how to use rEEG though there are also quite a few others who use it with outside help in interpreting results and advising treatment. The doctor who was posting here on Babble and answered a lot of our questions is one of the 3. He isn't the one I am going to however.
The doctor I saw is Hamlin Emory. He's located around Los Angeles (an office in Beverly Hills and another one in Thousand Oaks). He's one of the two doctors who devised the whole rEEG process. I believe the brain scans existed already but they devised a way to compare them to similar brain scans of others to see what medications worked for those others. They created a database with the results of many scans that is used to help prescribe for new patients. Anyway, here's his website:
and here's the website for the company he founded that created the database:
By following links on these websites you should be able to find out if there are any doctors near where you live who use this system.
I was impressed at my first visit but it is very early in the process for me. I don't know yet what he is going to prescribe for me or what kind of result I will have. I'll continue to post about my experience as it plays out. I've heard of people that he has been able to help very quickly but I've also heard of at least one person who had a prolonged period of testing things out and retaking the brain scans. She is the person who recommended him so highly to me. My fingers are crossed that it works out well for me and that I'm able to recommend this to help many others.
Kara
Posted by 4WD on June 17, 2005, at 22:00:47
In reply to Re: the clinic/doctor I'm going to, posted by KaraS on June 17, 2005, at 1:17:35
Kara, thanks for posting all of this. Many of us here are holding our breaths for you (and for us, too).
Marsha
Posted by KaraS on June 17, 2005, at 22:40:39
In reply to Re: the clinic/doctor I'm going to » KaraS, posted by 4WD on June 17, 2005, at 22:00:47
> Kara, thanks for posting all of this. Many of us here are holding our breaths for you (and for us, too).
>
> Marsha
Thanks so much! I'm a little discouraged right now because I have to wait another couple of weeks for the rEEG test. I've been having the worst time getting prior blood test results faxed over to Dr. Emory's office. Because of that I won't be able to get the rEEG done before the technician goes on vacation. Oh well, what's another couple of weeks when you've suffered for years already, right?k
Posted by 4WD on June 17, 2005, at 22:48:15
In reply to Re: the clinic/doctor I'm going to » 4WD, posted by KaraS on June 17, 2005, at 22:40:39
> Thanks so much! I'm a little discouraged right now because I have to wait another couple of weeks for the rEEG test. I've been having the worst time getting prior blood test results faxed over to Dr. Emory's office. Because of that I won't be able to get the rEEG done before the technician goes on vacation. Oh well, what's another couple of weeks when you've suffered for years already, right?Uhh, hell?
Marsha
>
> k
Posted by KaraS on June 18, 2005, at 2:20:35
In reply to Re: the clinic/doctor I'm going to » KaraS, posted by 4WD on June 17, 2005, at 22:48:15
Posted by Cairo on June 18, 2005, at 12:06:11
In reply to Re: the clinic/doctor I'm going to » 4WD, posted by KaraS on June 17, 2005, at 22:40:39
Dr. Emory's site lists links to only Drs. Schiller and Hoffman. Any idea who else can do the rEEG on the east coast or in the South, but works with CNS Response?
Cairo
Posted by 4WD on June 18, 2005, at 15:19:42
In reply to Re: Other rEEG locations?, posted by Cairo on June 18, 2005, at 12:06:11
> Dr. Emory's site lists links to only Drs. Schiller and Hoffman. Any idea who else can do the rEEG on the east coast or in the South, but works with CNS Response?
>
> Cairo
Hi Cairo,There's a place on that site where you can contact them by email. You tell them where you live and someone will email you back and tell you if there is a clinic or doctor near you who does it. I emailed them, two days later got back a nice response telling me that unfortunately there was no doctor in my area.
Hope this helps.
Marsha
Posted by ravenstorm on June 21, 2005, at 14:06:06
In reply to Re: Other rEEG locations? » Cairo, posted by 4WD on June 18, 2005, at 15:19:42
Thanks for the babble mail. I haven't been well enough to be on the computer for a few days.
I am a bit concerned about the person who had to keep trying out different meds even after the rEEG. I mean, I thought that is what the rEEG was suppossed to eliminate: the trial and error process. What went wrong with her tests. Or could she not stand the side effects of the meds. That is my concern. A medication might "match" to fix my symptoms, but what if I am so sick on it I can't take it? (I get severe stomach problems, nausea from almost everything!)
Thanks! Keep us posted
Posted by KaraS on June 21, 2005, at 17:37:43
In reply to Re: KaraS, posted by ravenstorm on June 21, 2005, at 14:06:06
> Thanks for the babble mail. I haven't been well enough to be on the computer for a few days.
>
> I am a bit concerned about the person who had to keep trying out different meds even after the rEEG. I mean, I thought that is what the rEEG was suppossed to eliminate: the trial and error process. What went wrong with her tests. Or could she not stand the side effects of the meds. That is my concern. A medication might "match" to fix my symptoms, but what if I am so sick on it I can't take it? (I get severe stomach problems, nausea from almost everything!)
>
> Thanks! Keep us posted
Hi,
Unfortunately, not being able to physically tolerate medication(s) that will probably work for you (based on the rEEG) is always a concern. The rEEG will only tell you what it thinks will work for your brain, nothing else.The reason I was given that it took so long for this particular person to get results was that she had several other issues going on that weren't yet addressed by the time she started the rEEG. It turned out that once she started working with a holistically oriented MD and she got tested and treated for many other things that were throwing her system off, that she started to respond to the rEEG recommendations. (I don't remember all of her issues but I know that she had hormonal problems, thyroid issues that hadn't been recognized and a problem breaking down or utilizing one of the B vitamins (B6 I think?) along with allergy issues). Dr. Emory does have you test for thyroid problems when you start out with him or you can give him prior results. She used tests from a previous doctor or lab that weren't all that accurate. In her case, she ended up having her new MD and Dr. Emory working closely together and coming up with solutions for her. She now takes Parnate, amino acids, hormones, Armour thyroid, vitamins and supplements, B12 shots, enzymes and uses a lightbox. Her "cure" involved a lot of other things besides what Dr. Emory deals with because her situation warranted it. She now considers herself 100% better though.
I hope that my situation is less complicated and that the rEEG alone will be enough for me. I personally feel that for a lot of us who are treatment resistant, that there probably are other factors invovled for us, however, so I wouldn't be surprised if I need to have some other things in my system checked out.
Kara
Posted by Cairo on June 21, 2005, at 21:12:12
In reply to Re: KaraS » ravenstorm, posted by KaraS on June 21, 2005, at 17:37:43
I'm having a very difficult time bringing up studies regarding the use of rEEG and medication response/prescribing. Most point back to Dr. Emory or the other listed on his website.
Other than UCLA, is there anyone/place doing studies on the effectiveness of rEEG? I've raised the issue of it for my daughter who is a very tough case, but my husband wants to see institutional studies.
Help, anyone? Thanks.
Cairo
Posted by KaraS on June 22, 2005, at 3:14:09
In reply to Re: rEEG validation, posted by Cairo on June 21, 2005, at 21:12:12
> I'm having a very difficult time bringing up studies regarding the use of rEEG and medication response/prescribing. Most point back to Dr. Emory or the other listed on his website.
>
> Other than UCLA, is there anyone/place doing studies on the effectiveness of rEEG? I've raised the issue of it for my daughter who is a very tough case, but my husband wants to see institutional studies.
>
> Help, anyone? Thanks.
>
> Cairo
Unfortunately I can't help you. I couldn't find much info on this either. Dr. Emory told me that UCLA has its own version of rEEG now. I don't know what that's called but maybe they have more test results on their version. (Then again, even if they did, you might wonder about their subjectivity.) The problem is who is going to pay for a study of the efficacy of rEEG. Certainly not the drug companies who are only interested in promoting their own medications.I decided to try it based on the little I read, the posts here from Dr. Hoffman and the anecdotal reports from someone who has gone through it (she also told me about 2 people she knows who got great results). The process makes sense to me intuitively and I'm so tired of just trying different things randomly. I decided that all of these things together were enough for me.
Kara
Posted by ravenstorm on June 23, 2005, at 21:43:39
In reply to Re: rEEG validation » Cairo, posted by KaraS on June 22, 2005, at 3:14:09
Kara-I remember from past posts you being very oppossed to SSRIs (which I can certainly understand!). Will you take an SSRI if the rEEG recommends it?
Posted by KaraS on June 24, 2005, at 3:52:09
In reply to Re: rEEG validation, posted by ravenstorm on June 23, 2005, at 21:43:39
> Kara-I remember from past posts you being very oppossed to SSRIs (which I can certainly understand!). Will you take an SSRI if the rEEG recommends it?
Gee, was it that obvious? I guess I have come across as very opposed to SSRIs. I suppose it's because I have always felt flat and apathetic on them. I think I harbor some anger at all of the time I've wasted trying one after another of them without much luck. Then after I came here, I read so many stories of people with the SSRI apathy and my anger grew.Back to your question, which was a good one. I have thought about the possibility of the rEEG showing an SSRI for me. I think that looking back, the SSRIs gave me incomplete responses. Maybe I needed a mood stabilizer and/or a stimulant and/or something else in addition to them. Maybe if I had been able to tolerate Wellbutrin, the combination would have been good and I wouldn't have such little respect for the SSRIs now. So I guess the answer to your question is that yes I would be willing to try an SSRI again but only if some other medications are recommended in combination with it. If only an SSRI is indicated for me, then I wouldn't bother and I'd have lost all respect for the rEEG process.
Kara
Posted by ravenstorm on June 24, 2005, at 8:21:30
In reply to Re: rEEG validation » ravenstorm, posted by KaraS on June 24, 2005, at 3:52:09
Keep us posted. I have my fingers crossed for you. When are you getting the rEEG done?
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